North Carolina mom runs New York marathon to raise funds for rare disease affecting her and her son

North Carolina mom runs New York marathon to support funds for rare disease for her and son

A Raleigh resident has achieved a remarkable feat by finishing the New York Marathon, and it’s something worth celebrating. What makes her accomplishment even more impressive is that she accomplished it while living with a unique genetic disorder that her son also has.

Holly Griffin accomplished a remarkable feat by completing the New York Marathon, not just for her own personal achievement, but to support the Children’s Tumor Foundation. The foundation is dedicated to funding research for treatments and cures for neurofibromatosis, a group of genetic disorders that results in the growth of tumors on nerves. Holly’s participation in the marathon serves as a powerful gesture to raise awareness and support for the cause.

According to Griffin, her tumors can be a source of discomfort, but they certainly haven’t hindered her passion for running. Her 13-year-old son, Hayes, who shares the same condition, has also refused to let it impede his active lifestyle.

Holly Griffin elaborated that the impact of NF on her and Hayes is currently distinct from each other.

Hayes had to undergo around twelve surgeries due to the disorder that caused a bow in one of the bones in his leg.

Griffin remembered how his friend had difficulty walking at times. He had to wear a brace on his leg constantly, and he often feared that his leg would break.

At the age of 10, Hayes found himself in a tough situation where he had to decide between undergoing another complicated surgery or having his leg amputated.

When asked about his decision to amputate his leg, he shared that he believed it would open up more opportunities for him to pursue his passions, such as making the basketball team. “I decided to get my leg amputated because I thought if I got my leg amputated, I would have more chances to do more things,” he explained. Despite the challenges he faced, he remained determined to achieve his goals and live life to the fullest.

According to Hayes, the amputation has actually granted him more independence and freedom. In fact, there are moments where he even forgets that he has only one leg.

According to his mother, he is doing exceptionally well.

According to his mother, he is currently attempting to make the school basketball team. Additionally, he is an active participant in the church basketball league and a member of the running club. It seems that he is eager to try new things and is not afraid of a challenge.

“He was simply astonishing,” she exclaimed. “I was always in awe of him. He has endured immense pain and arduous recovery.”

With her son in mind, Griffin made the decision to participate in the NY Marathon.

As she spoke, her voice was determined and unwavering. “I wanted to prove to him that we are capable of overcoming challenges,” she explained. “Having NF may present obstacles, but it doesn’t define us. Despite my tumors and his amputated leg, we’re still able to participate in all the same activities as anyone else.” Her words were a testament to the resilience and strength of the human spirit, highlighting the power of perseverance in the face of adversity.

Collaboratively, they are striving towards raising awareness and funding research for the treatment of neurofibromatosis. With the help of races and other fundraising events, they have successfully gathered a sum of almost $30,000 for the Children’s Tumor Foundation.

Completing the New York Marathon is a truly significant achievement.

Hayes expressed admiration for the person in question, stating, “I just think she’s so cool for that. I could never do that.”

As a mother, she has unwavering faith in her son’s abilities. She firmly believes that he can accomplish anything he sets his mind to.

With a smile, she uttered, “Perhaps someday.”

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